Ichthyosis

Kallie has been diagnosed with Ichthyosis, which is a skin condition which causes the skin to be really thick and scaley as it peels off. Here is a link to the website
http://www.scalyskin.org

There are like 15% of children who it clears up on its own within 2-3 weeks, its a long shot but we are praying for that.

Some of the risks are overheating, b/c her skin is so thick she cannot sweat and adequately cool herself. As athletes this upsets me b/c she may not be able to play outdoors for extended periods b/c she will get too hot. Obviosuly she can't spend much time in the sun, although there is literature that says the sun can be good for it. They also worry about skin infections, b/c her skin is dry and flaky it is susceptible to infection. They also worry about her eyes and ears, eyes b/c they will get dried out and ears b/c the skin can grow around them.Its just so heartbreaking and worrisome, she is such a pretty little girl and I would hate for this to affect her negatively for the rest of her life. There is no cure but they can treat it.We will know more on Monday when we see the dermatologist, so please please pray that this is a mild case (which several of the docs think its really mild) b/c if that's the case then its just a matter of keeping her skin hydrated. If its more of a moderate case she may require OT to straighten out her hands and feet b/c the skin is so tight it may not allow them to straighten out.