We had great derm appointments today! I haven't been checked it about 3 years so it was good to get the once over and have her tell me my skin looks good. But then again who really cares about my skin, its Kallie we are all worried about so on to the good stuff.
She said that Kallie looked great, she was very pleased with her progress and feels that b/c she has gotten so much better so quickly its a really good sign of things to come. She said that she is starting to see "normal" skin and that its only going to get better. I told her that I was really pleased with the way her tummy, back, and the tops of her legs are looking and asked if she thought it would stay like that. She seemed to think that it would get even better than that and that quite possibly in a few years you won't even notice that she has anything wrong. That's awesome and exciting news!!
We are going to start using a Urea based exfoliatant to try to get that stubborn collodion on her arms, legs and head to come on off. We have to try it in a small spot at first to see if she tolerates it, but as long as its not too hard on her we have the green light to use it in those places. She said that we will see dramatic improvement once we start using it. We saw such a huge improvement just with the Amlactin and thats OTC, I can only imagine what Rx strength stuff is gonna do!
I also discussed the diaper rash she has with Dr Swain. Its not like a rash, rather like raw skin (sorry for the TMI). The pediatrician thought it was dairy sensitivity that was causing both the rash and the blood in her stool that's why I had to cut out dairy. The blood did go away but the rash did not completely heal. And when they cultured a diaper it came back with a small amount if staph. When she got that eyelid staph infection and we treated it with Keflex the rash cleared up completely which lends me to believe that the rash is in fact staph. I asked her if she thought the staph could cause the blood in the poop and she said that was a question better directed at a GI doctor. However, she wants me to use Bactrim on her bottom to get that rash to clear up. I am also going to change diapers from Pampers Sensitive to Huggies Supreme b/c I find that the Pampers will sometimes stick to her bottom and that may be causing the rash as well. Hopefully we will get the rash cleared up and I can have my cheese back! LOL
I asked her about her eyelids and how to best keep them clean. An eye doctor suggested to my mom to use diluted Johnson's baby shampoo but Dr Swain said that allergists hate Johnsons b/c they have so many dyes in them, that she would suggest just using the Cetaphil wash that we are using now to clean her eyelids. I also asked about using Neosporin when I see an open spot on her skin to prevent infection, she said that the newest thing with allergists is that Neosporin should not be used on closed wounds, that you should just use plain vaseline. So she told me when I saw small spots like that to just use Vaseline and that would work just fine.
I feel great about the visit, I feel like we know a lot more now and are handling it better. It of course felt great to hear that she looked so good and that I was doing a good job. I hear that a lot from people and I believe it but its great to hear it from a dermatologist. So we just wait and keep on trucking and watch and she gets better and better!!
Thanks for all the prayers for her, keep them coming!!
Tuesday, September 1, 2009
Derm Appointment
Posted by Kati at 11:48 AM
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1 comments:
Hi there
Just stopped by to say I'm another person with ichthyosis (netherton's syndrome). I live in Australia.
Looking forward to reading more from you.
I blog too, some posts about my skin, but more so about life in general.
Carly
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